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Rare Patients: How to find them, treat them and keep them

MRN’s Vice President of Nursing set to present at Orphan Drugs and Rare Diseases Conference, London, 19-20 October 2015

Medical Research Network (MRN), the largest nursing provider in the clinical trials sector, is set to present at the upcoming Orphan Drugs and Rare Diseases Conference, to be held in London from 19th-20th October this year. MRN has also been confirmed as a sponsor of the event, now in its fourth year.

Helena Baker, Vice President of Nursing, will be presenting on Rare Patients: Find them, Treat them & Keep them at the event, which is being held at the Holiday Inn Regents Park. 

Helena's presentation draws from over 22 years’ experience in nursing and healthcare, having held positions at the Royal London Hospital, Ferring Pharmaceuticals Ltd and St Bartholomew’s Hospital as well as acting as a healthcare analyst to the pharmaceutical industry.  Helena’s presentation will cover key issues in clinical development, including:

  • Why patients take part in clinical trials and what makes them drop out
  • Real-life patient case studies on clinical trial participation
  • How home clinical trial visits can reduce burden on rare disease patients and their families
  • Incorporating home clinical trial visits into your protocol

Helena said: "We're pleased to be sponsoring the Orphan Drugs and Rare Diseases Conference and I'm honoured to be able to present to such a prestigious audience.

"This event has now been running for four years and it gets stronger and stronger each year. I hope that people will gain as many new perspectives from my presentation as I will surely gain from the other speakers."

The 4th Annual Orphan Drugs and Rare Diseases Conference will feature a series of interactive presentations and panel discussions, and will concentrate on how pharmaceutical, biotech, patient organisations and academia are structuring to participate in and leverage the growing orphan market.

To book your place at the Conference email events@smi-online.co.uk and visit www.smi-online.co.uk/pharmaceuticals/uk/orphan-drugs-rare-diseases for more details. 

MRN is the world’s leading provider of home healthcare for patients in clinical trials, specifically aimed at boosting patient recruitment and maximising patient retention.  For more information visit www.themrn.co.uk



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